Les défis auxquels sont confrontés les patients atteints de rétinite pigmentaire en Iran et en Suède
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3,5 millions de personnes souffrent de r�tinite pigmentaire dans le monde. La r�tinite pigmentaire est une maladie oculaire qui endommage la r�tine. La r�tine est la couche de tissu situ�e � l'arri�re de l'oeil qui convertit les images lumineuses en signaux nerveux et les transmet au cerveau. La r�tinite pigmentaire peut �tre h�r�ditaire. Cette affection peut �tre caus�e par un certain nombre d'anomalies g�n�tiques. Selon les donn�es statistiques, 3 000 personnes atteintes de RP vivent en Su�de et 4 000 personnes sont enregistr�es aupr�s de l'Association de la RP en Iran, mais d'apr�s des entretiens men�s aupr�s de patients actifs de l'Association iranienne pour la protection des personnes atteintes de RP, on estime que, malgr� ces derni�res statistiques, 70 000 personnes souffrent de RP en Iran. L'objectif principal de cette recherche est d'�tudier les facteurs influant sur la satisfaction de vie des patients atteints de RP et d'identifier les d�fis auxquels ils sont confront�s dans leur vie personnelle et sociale, en fonction des obstacles individuels, sociaux, structurels et environnementaux. En outre, les relations entre ces diff�rents niveaux de vie sont explor�es et discut�es afin d'expliquer leur oppression et leur exclusion sociales.
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