Tengo Autismo: Pero El Autismo No Me Tiene a Mi
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" Autismo?.. Pero mi hijo está sano, brinca, corre, le encanta jugar, ríe mucho, es independiente, alegre y muy inteligente! Una noticia que no podía creer!". Es éste el caso de Elda Reyes Castañón, la autora del presente relato de vida, en la etapa más difícil: del proceso al diagnóstico. En donde está la incertidumbre por saber que es "eso" que hace diferente los comportamientos de tu hijo. "No me mira a los ojos, no habla, lo llamo por su nombre y no responde, demasiados berrinches, le gusta correr en círculos, alinear su juguetes..." Cómo podemos identificar que nuestro niño o niña podría presentar características del espectro del autismo? Cómo resolver la problemática familiar y social que subyace a esta situación? Existe alguna luz al final del camino que ofrezca respuestas y permita reconstruir la vida en familia después de la tormenta que deja el diagnóstico? A éstas y otras preguntas la autora da respuesta de una manera vibrante y estremecedora, desde el centro mismo del huracán que le tocó vivir entonces, pero que luego de un importante y trascendente proceso, hoy ya está convertido en un colorido bosque de esperanza. "Del proceso al diagnóstico, cada persona lo enfrenta de diferente manera, es claro que el autismo, no es una desgracia en sí mismo: la verdadera desgracia reside en la ignorancia y la apatía. En la situación en la que estemos, no debemos quedarnos sin hacer nada, de los muchos o pocos recursos con los que contemos, tenemos el recurso más importante: el amor a nuestro niño o niña! Por ellos y por nosotros hay que seguir buscando, preguntado, informándose, tocar todas las puertas, alguna de éstas tiene que abrirse. Nuestros niños son guerreros innatos y nosotros aprenderemos de nuestros hijos a luchar, como padres somos las voces de ellos, que se escuchen! Y nunca olvidar que ellos tienen autismo y no el autismo los tiene a ellos".
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