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Ultra-Violet: One Girl's Prader-Willi Story by Debbie Frisk, Chelsea McCutchin

Ultra-Violet: One Girl's Prader-Willi Story

by Debbie Frisk , Chelsea McCutchin
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Book cover type: Paperback
  • ISBN13: 9781939418708
  • Binding: Paperback
  • Subject: N/A
  • Publisher: Rtc Publishing
  • Publisher Imprint: Rtc Publishing
  • Publication Date:
  • Pages: 82
  • Original Price: GBP 10.58
  • Language: English
  • Edition: N/A
  • Item Weight: 146 grams
  • BISAC Subject(s): Children with Special Needs

Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Ultra-Violet: One Girl's Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet.

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