• ISBN13: 9789352807741
• Binding: Hardcover
• Subject: Sociology and Anthropology
• Publisher: Sage Publications
• Publisher Imprint: SAGE India
• Publication Date: September 16, 2018
• Pages: 236
• Original Price: INR 795.0
• Language: English
• Edition: N/A
• Item Weight: 454 grams
• BISAC Subject(s): General

Disability and Care Work: State, Society and Invisible Lives explores the lived reality of children with disabilities and those involved in parenting and caring for them. It discusses the extent to which the needs of the disabled and their caregivers have been met by health and welfare initiatives, and finds substantial gaps. The book describes vividly how the families of children with disability negotiate the uncertain journey of identifying their child’s disability, obtaining a diagnosis, accessing appropriate services and their ongoing efforts to reconcile with and recognise their child’s unique situation and mode of being. It critically examines the gendered dimensions involved in caregiving, the role of the state and civil society, and the legal and institutional frameworks in place. The book calls for inclusion of disability treatment at the primary care level, enhanced technology use for diagnosis and information, coordinated national level disability care policy formulation and organised action by the disabled and their caregivers to ensure their needs are addressed by the state and society.

Chakravarti, Upali: - Upali Chakravarti is Assistant Professor at the Department of Elementary Education, Miranda House, University of Delhi, Delhi. She has done her Masters in Psychology from University of Delhi and PhD from Jawaharlal Nehru University. Her research and teaching interests are in the areas of developmental psychology; education, particularly special and inclusive education; disability studies; and health issues.