Die soziale Dimension einer chronischen Erkrankung im Kindes- und Jugendalter: Erkenntnisse aus der pädiatrischen (Neuro-)Onkologie
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Die vorliegende Studie befasst sich mit der sozialen Dimension von chronisch erkrankten Kindern bzw. Jugendlichen und deren Familien am Beispiel der p�diatrischen (Neuro-)Onkologie. Im Interesse steht, welche Bereiche der sozialen Dimension aufgrund der Erkrankung betroffen sind, wie sich diese im Behandlungsverlauf ver�ndern und welche Einfl�sse die medizinischen Aspekte haben. Anhand der quantitativen (Quer- und L�ngsschnittstudie) wie auch qualitativen Ergebnisse konnten f�nf Bereiche der sozialen Dimension herausgearbeitet werden (sozio�konomische, sozio�kologische, kulturelle und strukturelle Bereiche sowie der Bereich sozialer Netzwerke und sozialer Unterst�tzung), die wiederum in das biopsychosoziale Modell eingegliedert werden. Die Ergebnisse der Studie verdeutlichen den Einfluss der sozialen Dimension bei chronisch erkrankten Kindern bzw. Jugendlichen sowie deren Familien und stellen eine Ann�herung dar an eine gleichrangige Betrachtung von Praxis und Forschung im Rahmen des biopsychosozialen Modells. Dies bietet Klinischen Sozialarbeitenden in der Praxis die M�glichkeit, auf Basis des Modells die Versorgung zu spezifizieren sowie die Notwendigkeit der Behandlung der sozialen Dimension gegen�ber anderen Professionen - z.B. der Institution und den Kostentr�gern - zu st�rken.
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