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Konzeptentwurf für das Consent-Management am Medizinischen Datenintegrationszentrum der Universitätsmedizin Göttingen by Krepinsky, Ilka

Konzeptentwurf für das Consent-Management am Medizinischen Datenintegrationszentrum der Universitätsmedizin Göttingen

by Ilka Krepinsky
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Book cover type: Paperback
  • ISBN13: 9783346742179
  • Binding: Paperback
  • Subject: N/A
  • Publisher: Grin Verlag
  • Publisher Imprint: Grin Verlag
  • Publication Date:
  • Pages: 70
  • Original Price: USD 60.5
  • Language: German
  • Edition: N/A
  • Item Weight: 105 grams
  • BISAC Subject(s): Nursing / General

Bachelorarbeit aus dem Jahr 2021 im Fachbereich Gesundheitswissenschaften - Gesundheitslogistik, Note: 1,3, Hamburger Fern-Hochschule, Sprache: Deutsch, Abstract: Die Arbeit konzipiert ein Consent-Management, ausgerichtet in erster Linie an der Implementierung des Broad Consents der Medizininformatik-Initiative aus organisatorischer und technischer Sicht an der Universitätsmedizin Göttingen. Medizinische Daten stellen eine unermessliche Ressource dar, um Forschung und Versorgung näher zusammenzubringen und personalisierte Medizin (weiter) zu entwickeln. Seit 2018 werden im Rahmen der Medizininformatik-Initiative an sowohl universitären als auch an au eruniversitären Klinikstandorten in der Bundesrepublik Deutschland Medizinische Datenintegrationszentren aufgebaut, welche medizinische Daten aus der Routineversorgung sammeln, pseudonymisiert und/oder anonymisiert halten, aufbereiten und zu medizinischen Forschungszwecken bereitstellen. Grundlage für eine derartige Verarbeitung von Daten ist eine Einwilligung durch die oder den Patienten. Jedoch kann heute noch nicht gesagt werden, für welchen genauen Forschungszweck welche der gehaltenen Daten zu einem bestimmten Zeitpunkt notwendig sind. Das soll aber eine datenschutzrechtlich konforme und ethisch unbedenkliche Einwilligung benennen können. Bei der Zahl der bereits zu diesem Zeitpunkt vorliegenden medizinischen Daten allein an der Universitätsmedizin Göttingen müssten ergo bei jedem datengestützten Forschungsvorhaben die einzelnen Patient*innen kontaktiert (sofern sie eine Einwilligung in eine Kontaktierung gegeben haben), informiert und angefragt werden, ob sie ihre Einwilligung erteilen .Dieser Aufwand ist schlecht bis gar nicht umsetzbar und würde letztendlich einen möglichen medizinischen Fortschritt wieder verlangsamen. Im Rahmen der Medizininformatik-Initiative wurde deshalb der sogenannte "Broad Consent" entwickelt, welcher bei Zustimmung ermöglicht, die betreffenden Daten zu unzähligen Forschungsvorhaben z

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