Living in Death's Shadow: Family Experiences of Terminal Care and Irreplaceable Loss

Name: Living in Death's Shadow: Family Experiences of Terminal Care and Irreplaceable Loss
Brand: Johns Hopkins University Press
SKU: 9781421421841
Price: 3926.0 INR
Availability: InStock

by Emily K. Abel

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ISBN13: 9781421421841
Binding: Hardcover
Subject: N/A
Publisher: Johns Hopkins University Press
Publisher Imprint: Johns Hopkins University Press
Publication Date: February 28, 2017
Pages: 184
Original Price: GBP 35.0
Language: English
Edition: N/A
Item Weight: 386 grams
BISAC Subject(s): Emergency Medicine, History, and Public Health

About The Book

Challenging assumptions about caregiving for those dying of chronic illness.

What is it like to live with--and love--someone whose death, while delayed, is nevertheless foretold? In Living in Death's Shadow, Emily K. Abel, an expert on the history of death and dying, examines memoirs written between 1965 and 2014 by family members of people who died from chronic disease. In earlier eras, death generally occurred quickly from acute illnesses, but as chronic disease became the major cause of mortality, many people continued to live with terminal diagnoses for months and even years. Illuminating the excruciatingly painful experience of coping with a family member's extended fatal illness, Abel analyzes the political, personal, cultural, and medical dimensions of these struggles.

The book focuses on three significant developments that transformed the experiences of those dying and their intimates: the passage of Medicare and Medicaid, the growing use of high-tech treatments at the end of life, and the rise of a movement to humanize the care of dying people. It questions the exalted value placed on acceptance of mortality as well as the notion that it is always better to die at home than in an institution. Ultimately, Living in Death's Shadow emphasizes the need to shift attention from the drama of death to the entire course of a serious chronic disease.

The chapters follow a common narrative of life-threatening disease: learning the diagnosis; deciding whether to enroll in a clinical trial; acknowledging or struggling against the limits of medicine; receiving care at home and in a hospital or nursing home; and obtaining palliative and hospice care. Living in Death's Shadow is essential reading for everyone seeking to understand what it means to live with someone suffering from a chronic, fatal condition, including cancer, AIDS, Alzheimer's, and heart disease.

About The Author

Abel, Emily K.: - Emily K. Abel is professor emerita at the UCLA-Fielding School of Public Health. She is the author of many books, including After the Cure: The Untold Stories of Breast Cancer Survivors and Hearts of Wisdom: American Women Caring for Kin, 1850-1940.

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