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Seltene Erkrankungen Und Der Lange Weg Zur Diagnose: 15 Persönliche Fallgeschichten by Lorenz Grigull

Seltene Erkrankungen Und Der Lange Weg Zur Diagnose: 15 Persönliche Fallgeschichten

by Lorenz Grigull
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Book cover type: Paperback
  • ISBN13: 9783662627525
  • Binding: Paperback
  • Subject: N/A
  • Publisher: Springer
  • Publisher Imprint: Springer
  • Publication Date:
  • Pages: 137
  • Original Price: EUR 42.05
  • Language: German
  • Edition: 1. Aufl. 2021
  • Item Weight: 227 grams
  • BISAC Subject(s): Pediatrics

​Das Buch zeichnet in 15 Fallvignetten den ganz individuellen Weg von Patienten mit seltenen Erkrankungen nach - Kinder und Erwachsene. Spannend und anschaulich schildert der Autor ihren Lebens- und Leidensweg auf der Suche nach einer Diagnose. Kinder- und Jugendärzte, aber auch alle anderen Haus- und Fachärzte lernen anhand dieser individuellen Fälle, genau hinzusehen, dem Patienten die richtigen Fragen zu stellen und auf Schlüsselerlebnisse zu achten. Den persönlichen Schilderungen folgen eine kurze Darstellung der Klink mit diagnostischen Hinweisen, Therapieoptionen sowie Links und Servicetipps für Arzt und Patient. Ziel des Buches ist, das Bewusstsein dafür zu schärfen, wann eine seltene Erkrankung in Betracht gezogen werden muss.

Prof. Dr. med. Lorenz Grigull, Kinder- und Jugendarzt, Master of Business Administration, Master of Medical Education, ist Leiter der Sektion Kinder am Zentrum für seltene Erkrankungen am Universitätsklinikum Bonn. Er forscht an der Entwicklung und Evaluation von Diagnose-unterstützenden Verfahren mit dem Ziel, die diagnostische Latenz insbesondere bei seltenen Erkrankungen zu verkürzen.

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