Viva la vita: così com'è

Name: Viva la vita: così com'è
Brand: Independently Published
SKU: 9798259445765
Price: 1405.0 INR
Availability: InStock

by Sabrina Boscaro

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ISBN13: 9798259445765
Binding: Paperback
Subject: N/A
Publisher: Independently Published
Publisher Imprint: Independently Published
Publication Date: May 15, 2026
Pages: 156
Original Price: GBP 12.49
Language: Italian
Edition: N/A
Item Weight: 159 grams
BISAC Subject(s): Women's Health

About The Book

Donna, mamma, moglie, figlia e amica, sono affetta da una malattia neurodegenerativa rara e senza cura, che ad oggi mi ha costretta in sedia a rotelle ma un domani molto probabilmente mi impedir� addirittura di muovermi, parlare e di ballare.
"Se non ballo sballo" � il mio motto: unisce la mia passione per il ballo e la mia ricerca costante di equilibrio, minato dalla malattia.
Sono ambasciatrice di Fondazione Acaref, e mi batto quotidianamente per la ricerca scientifica, affinch� si possa trovare presto una cura, unica via di fuga da un destino per molti atassici ancora ineluttabile.

"Mi ha fatto da specchio Rossella. Mi ha mostrato la cruda verit� di un destino che la vita aveva scelto anche per me.
Ma facendomi vedere, lei mi ha dato la forza di urlare al mondo quanto schifo fa questa malattia che nessuno di noi sceglie di avere, e quanto poco fanno le istituzioni che ci ignorano, non investendo per cercare cure. Investono nelle armi, sovvenzionano guerre, mentre noi che combattiamo battaglie quotidiane siamo lasciati soli".

"Sabri tu non sei un peso, non lo sei n� per me n� per i ragazzi. Tu sei mamma, sei moglie, sei tutto quello che ci mancherebbe se non ti avessimo. Tu ci dai la forza al mattino di alzarci proprio grazie alla tua malattia, e non a causa di essa. Sei la nostra vita, rinunciare alla tua presenza significherebbe rinunciare a vivere".

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